PatientSight Launches a Unique Subscription Platform for Insights into Rare Disease Patient Journeys - Industry News

PatientSight Launches a Unique Subscription Platform for Insights into Rare Disease Patient Journeys

In recognition of Rare Disease Day- February 29th, PatientSight, LLC is proud to announce a new service that provides a continuous connection between rare disease patients and life science organizations. PatientSight is a subscription-based platform where survey findings are collected, analyzed, and displayed as easily digestible dashboards. The patient journey is organized by disease, treatment, and brand experience. The surveys are recurring throughout the year, enabling life science organizations to examine key insights and trends within a population.


“The successful planning and marketing of new products and treatments for rare diseases requires a constant finger on the pulse of these unique patient types. Think of a patient journey study combined with an ATU tracker, with updated insights available at all times for subscribers”, said Dave Muggler, President, and Co-Founder of PatientSight. “When we talk about agile market research, this fits the bill.”


PatientSight is partnered with Rare Patient Voice, a leading recruitment firm connecting patients and family caregivers with opportunities to take part in all types of research studies. Founded in 2013 by veteran market research executive Wes Michael, Rare Patient Voice covers over 1,500 rare and non-rare diseases and conditions in nine countries, featuring a community of over 145,000.


“At Rare Patient Voice, we are excited to partner with PatientSight. Together, we look forward to sharing the opinions and insights of patients with researchers and companies, so they can be considered in the development and management of new and current life-changing products and services,” said Wes Michael, President of Rare Patient Voice.

PatientSight is designed for those in life science market research, marketing, new product planning, consulting, communications, and other functions involved with rare or specialty disease areas. It relies on a unique subscription model with a friendly interface, which can be easily used by various roles throughout the enterprise.